Today I am grateful! Autism can kick your butt, break your heart, and put it all back together in a single breath. It has been an on-going issue of feeling behind and falling behind of the autism that has been running at 90 mph with little to no sleep for what seems like eons. Today, I am putting that aside. I am focusing on all the great things because for too long I have been looking at what’s wrong instead of what’s right.
What’s right today? The sun is shining, the sky is blue, and the snow is melting. Isn’t that the obligatory weather talk? No, but seriously the sun feels good today. I am not focusing on the never-ending winter that many in the United States are partaking in. Have you seen the jokes on social media? It’s not April ____ (fill in the blank with the date), it’s the 105th of January? Picture this a bunch of people clearing out massive amounts of snow with the caption “Clearing the streets for the 4th of July parade.” Or my personal favorite, “I sure hope summer falls on a weekend so we all can enjoy it.”
It is all about making the most of when life gives you lemons make lemonade. Over a foot of snow fell in and around our city and the wind blew like crazy. I mean like 60+ mph wind gusts. When all the snow settled, there were some crazy big drifts left to contend with. As a family, we made a plan for clearing away the snow. It was heavy wet snow that took a lot of work to remove. We always wonder why we chose to live on a corner lot when there is snow to clean up. Especially with late season snows, we consider moving! While taking a break from clearing snow, D found a five-foot snow drift that was just calling his name. Without a second doubt, he decides to dive right in. With a smile on his face, he takes a running start and 1-2-3 dives right into the snow drift. He surfaces to the top laughing and shaking the snow with great delight. Sometimes it is the little things that make great memories.
I am grateful for healthcare providers that understand the complex needs of P. The providers can see that he is trying very hard to make positive gains. They all like to tell us small steps are forward steps. Even when the exam room had to be cleared of furniture, so five adults could come in, sit on the floor, and hold P close for a blood draw no one expressed dismay or disgust. Every face in the exam room was positive with every voice calm. P is fearful of blood draws to point that it causes anxiety attacks for him. He hates the thought of “loosing” blood. It is scary to him. One nurse spoke to P telling him that by tonight his body will make more blood. His body won’t even know that it went missing. It clicked for P, he stopped wriggling around, he stopped talking above the nursing staff and asked questions about his blood. The room got put back together, the nursing staff went back to their work, and P calmed his breathing with big inhales and soothing exhales. I was amazed at the teamwork that created a sense a calm. I was reminded of the Disney/Pixar movie Inside Out where the girl’s emotions talk about creating her core memories. I wondered if that moment would be a core memory for P. After our long morning at the children’s hospital we finished with a quick trip to the hospital cafeteria because that’s what we do. (Read here to find out how our love for the hospital cafeteria developed.)
I am grateful for so many things in my life. I have the opportunity to be available for my family and friends. Recently, I was visiting my grandma at the skilled care center. I was walking to the dining room when I came across a distressed woman. She was wringing her hands when she stopped me. “Can you help me, please?” I was a bit worried not sure what kind of help was needed, but I could see she needed help right now. I said to her, “Sure.” She continued on to tell me she misplaced a particular item. I looked around to see if she had dropped it in the hallway, but I did not see anything. The woman was so sad. I asked her questions what color is your item? How big is your item? Why is it so special to you? I felt grateful that I had the opportunity to talk to this woman because the more she spoke she was able to calm down. Once she calmed down, she was able to remember that maybe her item was left in her room. I am grateful for my husband, my kids, and my friends and family. I am especially thankful to be writing this blog. I started it as a project for me to learn something new and to be able to share a little of what I know. I didn’t know if anyone would read this blog. Each blog post, I am grateful and blessed for each person who takes the time out of their day to read the latest happenings from our605story. Thank you to each of you! I am grateful for the support I have received.
All my best to you,